Journal of Medical Internet Research

Patient design, rather than patient focus, should lead healthcare leaders in designing products, facilities, or technologies for patients.

Toronto And the PhiladelphiaAnd the September 12, 2022 /PRNewswire/- JMIR . Publications published “Patient Design: The Importance of Patient Involvement in Health Care Design” In the Journal of Medical Internet Researchwhich stated that patient design, rather than patient focus, should lead healthcare leaders in designing products, facilities, or technologies for patients.

Importantly, the research paper was co-authored by a doctor and a patient. Dr Bertalan MiskoPh.D., Ph.D., Director future medical instituteand “e-patient Dave” DeBronkart, a leading voice in the global e-patient community, shared real-life examples in their paper to emphasize the importance of patient design.

Video interview with Dr. Bertalan Misko here:

The authors argue that health care in the twenty-first century has undergone a paradigm shift, as defined by Thomas Kon In his 1962 classic, The structure of scientific revolutions. However, the paradigm by which clinicians are trained, care delivered, and care delivery is designed, has not changed significantly even though we call it “patient focused”.

The rise of the internet and digital health brought that era to an end.

From joining online patient communities to using an array of digital health sensors, patients bring new value to the table. For example, file # We don’t wait The movement is a community of people with diabetes taking disease management into their own hands, organizing themselves, and developing apps, platforms and other solutions to help each other. They have created open source “DIY pancreas” software that automatically provides patients with the appropriate doses of insulin based on their blood sugar level. The program was created entirely by the patient community without any contribution from medical professionals. Significantly, it is the second most popular app on GitHub, because every user can tweak it to suit their own bodies and preferences. who – which This is the patient’s true strength: the ability to take care of their own hands.

The authors conclude in their JMIR publications research output that we are at the end of the historical period where clinicians know important scientific facts and medical insights that patients cannot.

Before 1900, physicians in medical school were not even exposed to patients, but by the end of the 20th century, the Internet allowed knowledge to flow. Now in the 21st century, a plethora of personal health devices provide patients with access to more information than their physicians have.

Looms the possibility of true participatory medicine –Increasingly independent patients live according to their own priorities, in partnership and consultation with physicians as needed.

To realize the new potential of medicine, it must be improved around the wishes and priorities of its ultimate stakeholders –The party most at risk in how it all goes: the patient. Patient design is the approach that can happen.


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Key words – patient, patient design, user design, patient focus, patient focus, digital health, future, empowerment, engagement, engagement, engagement, patient focus, patient focus

JMIR . Publications is a leading, digital, open-access publisher of more than 30 academic journals and other innovative science communications products focused on the intersection of health and technology. its main magazine, Journal of Medical Internet Researchis the world’s leading digital health magazine in terms of breadth and clarity of content, and is the largest journal in the field of medical informatics.

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